My friend, her name is Valerie. She is a sweet and caring girl who gives more to others than Santa does on Christmas Eve. She has a loving family and a great group of friends that support her in every way.
Find out more about Valerie here
http://www.cfopn.org/ourstories.htm
It was until this past weekend that I found out just how supportive they actually were. In walks Vanessa, Valerie's younger sister. I find out that she has decided to bike From Niagara Falls to Queens Park, Toronto, Canada. She has decided that she wants to do more than just support her sister but also all the other people who has been diagnosed with F.O.P.
Vanessa, a striving student living in Toronto has decided raises money, not for her education or to pay her rent, but to donate 100% of the profits to the foundation who has supported her very sister ever since being diagnosed. All her profits will go to the Canadian F.O.P Network which is a registered charity in Canada. So who better to donate to than the frontline force in fighting F.O.P.
See more on what Vanessa has planned on FACEBOOK at
http://www.facebook.com/group.php?v=info&gid=368155889047
Now being a guy who loves to make a difference in peoples lives I have decided to join Vanessa in her trek across southern Ontario. I have always tried to help people live a life of healthy vitality but what better way to do that then riding a bicycle 130 kilometers from Niagara Falls to Toronto.
The ride will take place on Thursday June 17th, 2010. That leaves me 3 months to train and get accustomed to my new best from, the spin bike. I understand this journey will not be easy for Vanessa so she will need our help in her mission to stop F.O.P. Join her facebook group in support of her. A few others have already decided to joined her on the long road. Many have already donated to her support her cause.
Check out her donation page at
http://www.canadahelps.org/GivingPages/GivingPage.aspx?gpID=6904
You've got a mistake in this blog. My understanding is that Vanessa is planning to donate any funds she raises to a new Canadian charity, the Canadian FOP Network, rather than to the IFOPA. Her donation page does in fact direct donations to the Canadian FOP Nework (not that the IFOPA isn't worthy - it certainly is, but's it's not a registered charity in Canada like the CFOPN).
ReplyDeleteThanks!
@karenednamunro
I stand corrected. Problem fixed. Thank you!
ReplyDeleteWell you're both technically right. The CFOPN re-donates ALL of their money right back to the IFOPA. They are 100% volunteer (literally 100%) because they are made up of family members of people who have FOP and so they all basically volunteer their time. All of the money they raise and all of the money donated to them is sent back to IFOPA where it is used to fund life-saving research for a cure!
ReplyDeletePretty great, huh?
Also... Joe you are so sweet! Thank you so much for writing about what we're doing and helping to spread the word! And also for all your kind words about Val and I, you're the best!
Hey Joe!
ReplyDeleteThank u sooooo much for posting this!! Im so excited for this bike trek!! Even though Ill be on my scooter I can't wait!!
I'm so thankful for all the support and generosity we're getting! It truly means the world to us all!
Joseph! The brother I never had! (Not that I don't love my sister to death!)I thought I'd take this opportunity to thank you for being such an amazing guy to my sister and my entire family! Thank you for spreading the word about the FOP fundraising and participating in the super challenging bike ride.
ReplyDeleteLove you!